The ERN-EuroBloodNet together with EURORDIS created the European Network of Sickle Cell Disease Patients’ Organisations aiming to provide a centralised European point of contact for patients and caregivers. This new patient group started to request to Belgium to include sickle cell disorders in the newborn bloodspot screening and implement a newborn screening plan at national level.
(source: OrphaNews 10 May 2021)