CLSI NBS02 describes the basic principles, scope, and range of follow-up and education activities within the newborn screening program and system.
NBS02 provides additional information on:
Data management and analysis for follow-up.
Considerations with advanced screening technology.
Follow-up and educational needs for implementing screening for new diseases.
Ethics, equity and cultural sensitivity
For details please see https://clsi.org/standards/products/newborn-screening/documents/nbs02/