Welcome to ISNS
Welcome to the website of the International Society for Neonatal Screening (ISNS).
This society is aiming to advance screening for neonatal and infant sicknesses and disorders, worldwide. Please read its vision and mission, respectively.
ISNS has around 500 members in more than 70 different countries. Most members have a professional (para)medical background but a few are involved in parents or patients advocacy groups.
For more information about ISNS visit the ISNS-Info section (see here).
ISNS welcomes new members who have demonstrated an active interest in neonatal screening.
News for Members
If you do not receive the ISNS Newsletter please notify the ISNS Office. The archive containing most Newsletters can be found at https://membership.isns-neoscreening.org/member/files/ISNS_society_documents/Newsletters
If you change your email address please notify the ISNS Office.
Corona - Covid19 statement
Several members have asked for guidance on handling DBS cards from infants from potentially infected mothers. There is evidence that in properly dried blood samples the virus does not survive (see https://www.thelancet.com/journals/lanmic/article/PIIS2666-5247(20)30003-3/fulltext). Of course, as always, the usual precautions on handling biological materials should be taken.
Hot topics for members
- The first International Neonatal Screening Day will be held virtually on 28th June, 2021. For events devoted to this day please see the Events page (June 11, 2021)
- An IFCC/ISNS Task Force has developed a survey concerning the need and possibilities to expand NBS programmes in developing countries. Please see here the link to the survey: https://www.surveymonkey.com/r/LBR8JMM Deadline is June 30, 2021 (May 17, 2021)
- The first inaugural Guthrie symposium on newborn screening and metabolic disorders (virtual). Deadline for registration is June 25, 2021. Please click here for more information. (May 15, 2021)
- CLSI announces a revised version of its standard document NBS01Ed7 | Blood Collection on Filter Paper for Newborn Screening Programs, 7th Edition. Click on the link for information and/or purchase. (10 May, 2021)
- The presentations and discussions of the UKNSLN/ISNS SCID meeting in January 2021 are now available on the membership-only pages via https://membership.isns-neoscreening.org/member/files/archived_conference_presentations/2021_UKNSLN_ISNS_SCID_meeting/Newborn_screening_for_SCID_-_26th_and_27th_Jan_2020_programme.docx (April 22, 2021)
- An ISNS-sponsored study concerning points of attention when developing information materials for parents, see ISNS-Info/Guidelines page for details (April 10, 2021).
- An ISNS reaction to recently published EURORDIS and IFCC statements on newborn screening, see News page (Feb 24, 2021)
- The 2020 ISNS Awards recipients have been announced by Newsletter. Guthrie Award: Dr Georg Hoffmann, Heidelberg, Germany; Dussault Medal: Dr Francyne Kubaski, Porto Alegre, Brazil. (Feb 16, 2021)
- Please renew your membership if you have received an email to do so. Payment is possible online by credit card after having logged in or by bank transfer (for details see ISNS-Info). (Feb 4, 2021)
Worldwide members
The location of members worldwide as of Jan. 1, 2020, is shown in the picture on the right. Countries/states with at least one member are shown in blue, others in grey.
How do I become a member?
Please read this and subsequently click on the button Member application.
Why should I join as a member?
As a member you are entitled to see the privileged pages containing specific news items, a monthly neonatal screening literature service and a discount to ISNS-related conferences. Under certain conditions you may apply for travel grants to such conferences. Having access to the on line membership directory you have easier access to other members sharing specific interests.
ISNS Journal
The ISNS supervises a journal, the International Journal of Neonatal Screening, published by MDPI, Basel, Switzerland.
For information, please follow this link.
Members are stimulated to use this journal for their publications.
