Welcome to ISNS

Welcome to the website of the International Society for Neonatal Screening (ISNS).
This society is aiming to advance screening for neonatal and infant sicknesses and disorders, worldwide.
ISNS has around 470 members in more than 70 different countries. Most members have a professional (para)medical background but a few are involved in parents or patients advocacy groups.
For more information about ISNS visit the ISNS-Info section (see above).
ISNS welcomes new members who have demonstrated an active interest in neonatal screening.


Our vision

ISNS is recognized worldwide for its contributions to the detection of neonatal conditions and the prevention of their adverse outcomes through excellence in neonatal screening.

News for Members

If you do not receive the ISNS Newsletter please notify the ISNS Office. The archive containing most Newsletters can be found at https://membership.isns-neoscreening.org/member/files/ISNS_society_documents/Newsletters

If you change your email address please notify the ISNS Office.

Our mission

To enhance the quality of neonatal screening and medical services through dissemination of information, guidelines and best practices that benefit all family members and their babies by helping to ensure protection of babies from life-quality threatening conditions, such as phenylketonuria, congenital hypothyroidism, severe combined immunodeficiency, cystic fibrosis, hemoglobinopathies  and many others.

Corona - Covid19 statement

Several members have asked for guidance on handling DBS cards from infants from potentially infected mothers. There is evidence that in properly dried blood samples the virus does not survive (see https://www.thelancet.com/journals/lanmic/article/PIIS2666-5247(20)30003-3/fulltext). Of course, as always, the usual precautions on handling biological materials should be taken.

Worldwide members

The location of members worldwide as of Jan. 1, 2020, is shown in the picture on the right. Countries/states with at least one member are shown in blue, others in grey.

How do I become a member?

Please read this  and subsequently click on the button Member application.

Why should I join as a member?

As a member you are entitled to see the privileged pages containing specific news items, a monthly neonatal screening literature service and a discount to ISNS-related conferences. Under certain conditions you may apply for travel grants to such conferences. Having access to the on line membership directory you have easier access to other members sharing specific interests.

ISNS Journal

The ISNS supervises a journal, the International Journal of Neonatal Screening, published by MDPI, Basel, Switzerland.

For information, please follow this link.

Members are stimulated to use this journal for their publications.

Latest news