Links
Regional & National Screening Societies
isns
DGNS Deutsche Gesellschaft für das Neugeborenen-Screening auf endokrine und metabole Störungen
http://www.screening-dgns.de/
isns
AFDPHE Association Française pour le Depistage et la Prévention des Handicaps de l’Enfant
http://www.afdphe.org/
isns
SIMMESN Società Italiana per lo studio delle Malattie Metaboliche Ereditarie e lo Screening Neonatale
http://www.simmesn.it
isns
AECNE Asociación Española de Cribado Neonatal
http://aecne.es/
isns
UK Newborn Screening Programme Centre
http://newbornbloodspot.screening.nhs.uk/
isns
UK Newborn Screening Laboratories Network
http://www.newbornscreening.org
isns
Brazilian Society of Newborn Screening
http://www.sbtn.org.br/
isns
SLEIMPN Sociedad Latinoamericana de Errores Innatos del Metabolismo y Pesquisa Neonatal
http://www.sleimpn.org/
isns
National Newborn Screening & Genetic Resource Center
http://genes-r-us.uthscsa.edu/
isns
APHL – Association of Public Health Laboratories
http://www.aphl.org
isns
APHL – NewSteps
https://www.newsteps.org/
isns
ISIMD Irish Society of Inherited Metabolic Disorders
http://www.isimd.ie/
Support and parents groups
isns
Save Babies Through Screening
A Parent’s Resource on Newborn Screening
http://www.savebabies.org/
isns
European Genetic Alliances Network
http://www.egan.eu
isns
European Platform for Patients’ Organizations, Science and Industry
http://www.epposi.org
isns
isns
isns
Patient Advocates for Newborn Screening (PANS)
PANS is made up of several organisations who fully support Newborn Screening and want to advance screening in the United Kingdom.
http://www.pans-uk.net
isns
Kevin Alexander, M.A. (PKU/NBS/Rare Disease advocacy)
Corporate Filmmaker PKULife.tv Producer
http://www.pkulife.tv
isns
Screening, Technology And Research in Genetics (STAR-G) Project
http://newbornscreening.info
isns

Quality Control / Quality Assurance

isns
isns
isns

General Interest Links

isns
GeneTests
Medical genetics information resource
http://www.genetests.org/
isns
Society for the Study of Inborn Errors of Metabolism
http://www.ssiem.org
isns
Society for Inborn Metabolic Disorders
http://www.simd.org
isns
Japanese Society for Inherited Metabolic Diseases
http://square.umin.ac.jp/JSIMD/