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Home
News
Events
ISNS Info
ISNS Facts
ISNS Regions
Guthrie award
Dussault medal
Loeber award
Constitution
Guidelines
How to become a member
Links
Membership-info
Contact
Member login
News
Universal neonatal screening for Sickle Cell Disease in France
23 November 2022
The Haute Autorité de la Santé in France recently recommended to switch from targeted to universal Sickle Cell Disease screening i...
Together4RD launches policy asks at European Parliament
18 November 2022
On 10 November 2022, Together4RD organised an event at the European Parliament to launch their main policy asks to foster collaborat...
An optimal approach to rare disease management based on national experiences in Europe, North America and East Asia
10 August 2022
A new study has been published in the Rare Diseases and Orphan Drugs Journal presenting transdisciplinary approaches to managing rar...
Michigan to destroy leftover blood samples it took from newborns
12 July 2022
The state of Michigan has agreed to destroy more than 3 million dried blood spots taken from babies and kept in storage, a partial s...
France: Official number of cases per rare disease
12 July 2022
The French National Database on Rare Diseases (BNDMR) has published for the first time the number of rare disease patients registere...
International Neonatal Screening Day website now available
6 June 2022
ISNS, together with IPOPI and ESID founding organisation of Screen4Rare, is pleased to announce Screen4Rare’s launch of the In...
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