News - ISNS

25 June 2023

A new article in the Journal of Inborn Errors of Metabolism and Screening uses the national newborn screening (NBS) program in Vietn...

22 May 2023

CLSI NBS02 describes the basic principles, scope, and range of follow-up and education activities within the newborn screening progr...

14 April 2023

A new article published in the American Journal of Human Genetics aims to establish a framework for optimising the timing of screeni...

26 January 2023

Last month marks a year since the adoption in December 2021 of the UN Resolution ‘Addressing the challenges of persons living ...

26 January 2023

This month, the National Organization for Rare Disorders (NORD) is joining the larger United States’ rare disease community in...

23 November 2022

The Haute Autorité de la Santé in France recently recommended to switch from targeted to universal Sickle Cell Disease screening i...