The Canadian Organization for Rare Disorders (CORD) has launched a campaign for the formal adoption of a Rare Disease strategy in Canada. CORD is calling rare disease patients and Canadians in general to share their support for a rare disease strategy with MPs and provincial representatives and through social media posts in order to build an advocacy campaign in view of the expected release of the Canadian Strategy for Drugs for Rare Diseases later this year. CORD is calling for aligned federal and provincial rare disease strategies that ensure consistent and high levels of access to treatments for all Canadians with rare diseases, modernised regulatory processes to help accelerate access to treatments as well as a collaborative Canadian Network for Rare Diseases and the endorsement and adoption by all provinces and the federal government of Canada’s Rare Disease Strategy.
(source: OrphaNews 13 Mai 2022)