As we head into February, the rare disease community is gearing up to celebrate Rare Disease Day 2026 on 28 February. Coordinated by EURORDIS, this yearly event is a key moment when all members of the community can make their voices heard and add momentum to important advocacy work.
Groups around the world are organising events for their local rare disease communities. To learn more about events happening near you, take a look at the ‘Events Near You’ tab in your local language on the Rare Disease Day website. You can also help build awareness online by posting your own photos and experiences under the hashtag #RareDiseaseDay, or by sharing a range of downloadable resources, available in a number of languages.
To kick off the festivities, EURORDIS is hosting their annual Black Pearl Awards on 24 February in Brussels, Belgium and online.
(source: OrphaNews 10 February 2026)