Tyrosinemia type 1 : prognosis of type 1 tyrosinemia has improved due to newborn screening Consult the pubmed abstract To read more about “Tyrosinemia type 1” Orphanet J Rare Dis . 2020 Oct 12;15(1):281. (source: OrphaNews January 22, 2021) Related news Steps since the 2021 UN Resolution on Rare Diseases: A review Last month marks a year since the adoption in December 2021 of the UN ... 40 Years of the USA’s Orphan Drug Act: NORD takes stock This month, the National Organization for Rare Disorders (NORD) is joi... Universal neonatal screening for Sickle Cell Disease in France The Haute Autorité de la Santé in France recently recommended to swi... Together4RD launches policy asks at European Parliament On 10 November 2022, Together4RD organised an event at the European Pa... An optimal approach to rare disease management based on national experiences in Europe, North America and East Asia A new study has been published in the Rare Diseases and Orphan Drugs J... Michigan to destroy leftover blood samples it took from newborns The state of Michigan has agreed to destroy more than 3 million dried ...