European Rare Disease Day 2018

On 28 February, EU Commissioner for Health and Food Safety Mr Andriukaitis delivered a speech on the occasion of the European Rare Diseases Day 2018, being a great believer in – and supporter of – the European Reference Networks for rare, low prevalence and complex diseases. Mr Andriukaitis highlited immediate challenges to maximise ERNs effectiveness and ensure their sustainability:
– ensure the integration of ERNs into national or regional healthcare systems;
– ensure full support to the ERNs by hospital managers;
– raise concerns the selection and integration of new members in the 24 current ERNs.
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(source: Health First Europe, Newsletter February 2018)