2022 Rare Disease Day

In preparation of Rare Disease Day 2022, this year’s official video has been launched. The video is available in 40 languages and launches the international campaign to shed light on people living with a rare disease. EURORDIS and partners are calling on people worldwide to share this video on their social media with the hashtag #RareDiseaseDay. A school toolkit has also been launched to help teachers and parents understand and explain rare diseases to children. The school toolkit includes a children’s book available in several languages, as well as a lesson plan introducing a basic understanding of living with a rare disease to children.

Several international events will take place to mark the 15th Rare Disease Day and raise awareness for rare diseases. On the 28 February 2022, the fourth high-level meeting of the NGO Committee for Rare Diseases will be held at the World Expo in Dubai. This meeting will be the opportunity to discuss key global intergovernmental commitments, such as the United Nations Political Declaration on Universal Health Coverage (UHC) and the recently adopted United Nations General Assembly Resolution on Addressing the Challenges of PLWRD and their families.

Click here for the video.

(source: OrphaNews 15 Feb 2022)