
| DGNS Deutsche Gesellschaft für das Neugeborenen-Screening auf endokrine und metabole Störungen | |
| AFDPHE Association Française pour le Depistage et la Prévention des Handicaps de l'Enfant | |
| SIMMESN Società Italiana per lo studio delle Malattie Metaboliche Ereditarie e lo Screening Neonatale | |
| AECNE Asociación Española de Cribado Neonatal | |
| UK Newborn Screening Programme Centre | |
| Brazilian Society of Newborn Screening | |
| SLEIMPN Sociedad Latinoamericana de Errores Innatos del Metabolismo y Pesquisa Neonatal | |
| National Newborn Screening & Genetic Resource Center | |
| APHL - Association of Public Health Laboratories |
| Save Babies Through Screening A Parent's Resource on Newborn Screening |
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| European Genetic Alliances Network | |
| European Platform for Patients' Organizations, Science and Industry | |
| Genetic Alliance | |
| March of Dimes | |
| Patient Advocates for Newborn Screening (PANS) PANS is made up of several organisations who fully support Newborn Screening and want to advance screening in the United Kingdom. |
| CDC - Atlanta | |
| RfB/DGKL - Bonn | |
| UKNEQAS - Birmingham |
| GeneTests Medical genetics information resource |
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| Society for the Study of Inborn Errors of Metabolism | |
| Society for Inborn Metabolic Disorders | |
| Japanese Society for Inherited Metabolic Diseases |